Rebuilding Trust in Healthcare Through Data Privacy and Transparency

Written by:
Paul Burggraf
A doctor examining a patient in the hospital

Trust is the foundation of effective and, more importantly, proactive healthcare. Think about it: patients tend to share sensitive details about their lives, such as symptoms, routines, and health data, only when they believe their information will be used responsibly. Yet across Europe and beyond, trust in the healthcare system has been weakened by outdated data frameworks, costly inefficiencies, and the perception that institutions might prioritize financial benefits over patient needs. According to the Organisation for Economic Co-operation and Development (OECD), on average, only 62% of all respondents living with one or more chronic health conditions have trust in their healthcare system. It is already proven that higher levels of trust are associated with better health and clinical experiences. The key question is which policies to implement to increase healthcare trust? 

Previously, we covered only partially healthcare trust in our volume-based vs. patient-centric practices blog post. In this blog post, based on the chapter of our playbook “Before It Hurts”, we cover why trust is important in healthcare, how transparency and privacy form the backbone of trust, the five OECD trust drivers that further shape confidence, and finally, how healthcare organizations can put these principles into practice to strengthen patient relationships and deliver better outcomes.

Why Trust in Healthcare Matters?

Trust is a practical determinant of how healthcare systems function. But what is trust? OECD describes trust as a person’s belief that another person or institution will act consistently with their expectations of positive behaviour, even in cases when the outcomes or the actions to produce them cannot be verified. When that trust breaks down, participation falls, and so negative consequences emerge:

  • Delayed care: Individuals may postpone check-ups or avoid medical visits until problems escalate.
  • Incomplete disclosure: Patients may withhold critical health details, making accurate diagnosis more difficult.
  • Low digital adoption: Skepticism toward digital health tools reduces engagement with wearables, apps, or telehealth services. Consequently, this slows down digital health literacy, which is one of the key aspects of proactive healthcare.  
  • Increased costs: Higher complication rates and late interventions strain insurers and providers with avoidable expenditures.

This erosion of engagement not only affects individual outcomes but also creates inefficiencies at the system level. On the contrary, systems that safeguard data and act transparently build credibility. When patients understand and believe in how their information is used, positive effects follow: more openness to data sharing, higher adherence to treatments, greater willingness to participate in wellness programs, and stronger long-term relationships between patients and healthcare providers. For more information on how early prevention pays off in the future, you can visit our blog post here

How Does Data Transparency Drive Trust?

In our playbook, we already emphasize that transparency builds accountability and strengthens the bond between patients, providers, and insurers. To be clear, transparency is more than publishing policies, it means giving individuals visibility into the entire lifecycle of their data. Patients need to understand:

  • What data is collected from wearables, apps, or insurers, and in which contexts does collection take place.
  • How it is used to generate insights, shape recommendations, or improve care pathways.
  • Who benefits from this use, whether patients themselves, providers, insurers, or public health initiatives, and how outcomes are reported back.

Transparency also means clarity about data limitations, risks, and trade-offs. When information is framed in plain, accessible language, patients feel respected and empowered to make informed decisions about sharing their data. This sense of ownership tends to foster stronger participation in digital health programs.

European initiatives highlight how tangible benefits reinforce trust. Programs like Germany’s TK-Fit or Poland’s PZU Zdrowie demonstrate that when transparent data use is paired with clear value, such as premium discounts, personalized preventive plans, or simplified access to services, patients are more willing to engage. This shows that transparency is not only about disclosure, but about connecting responsible data practices with real-world advantages for the individual.

When organizations commit to this level of openness, they reduce uncertainty, minimize skepticism, and establish a foundation for long-term trust. Patients begin to view their data as a tool for empowerment rather than a resource being extracted without consent. In turn, providers and insurers gain access to richer, more reliable data streams, supporting better decision-making, fairer risk assessments, and improved health outcomes. In total, transparency transforms data exchange from a transaction into a partnership, creating alignment across the healthcare ecosystem.

How Does Data Privacy Drive Trust?

Privacy frameworks such as GDPR and national acts (e.g., Germany’s SGB V or France’s Loi Informatique et Libertés) ensure that data is collected with explicit consent, handled securely, and applied only for clearly defined purposes. These frameworks set the legal and ethical boundaries within which healthcare organizations must operate. Rather than acting as barriers to innovation, they create a stable environment of certainty that allows insurers, digital health companies, and providers to design new services without risking misuse of information.

Privacy by design means embedding protections into every stage of the data lifecycle. This includes end-to-end encryption of sensitive information, strict role-based access controls that limit who can view or modify data, and detailed consent mechanisms that allow patients to decide what is shared and with whom. It also involves regular audits, compliance checks, and transparent reporting to ensure that standards are met consistently.

By demonstrating these safeguards, organizations signal respect for patients’ autonomy and dignity. They show that personal data is treated not as a commodity but as a protected asset that belongs to the individual. This, in turn, creates the conditions for sustainable engagement, as patients who feel secure are more likely to share data over time, enabling richer insights, stronger preventive strategies, and more effective personalization of care. For more information on health data frameworks, check our blog post here

What Are the Five Pillars of Trust in Healthcare?

Drawing from OECD’s framework on trust in public institutions and our playbook, there are five essential drivers that apply directly to healthcare. Each of these pillars strengthens patient confidence and creates a more resilient healthcare system:

  • Responsiveness: Systems must react quickly to patient needs with relevant, timely care, showing that individual concerns are heard and acted upon. Responsiveness also requires adapting to new risks and expectations in a rapidly changing health environment.
  • Reliability: Processes and data use must be consistent over time, avoiding contradictions or unexpected changes. Reliable systems provide stable experiences that reinforce patient confidence in both traditional and digital healthcare services.
  • Integrity: Data practices must demonstrate fairness, avoiding conflicts of interest, misuse, or selective reporting. Integrity ensures that information is not only accurate but also handled in ways that align with ethical commitments.
  • Openness: Patients should have visibility into decisions, processes, and data applications. Openness means transparent communication about successes, failures, and the reasoning behind clinical or administrative decisions.
  • Fairness: Rules must apply equally, ensuring equitable treatment and preventing discrimination. Fairness also includes designing systems that address disparities in access, literacy, or digital readiness.

By embedding these principles into healthcare operations, organizations can move from transactional service delivery to genuine partnerships with patients. They can also demonstrate accountability to regulators, insurers, and society as a whole, creating a comprehensive trust ecosystem that supports both individual care and population health management.

How Thryve Strengthens Trust in Healthcare? 

Rebuilding trust in healthcare requires more than compliance; it requires clarity, fairness, and shared value. Data transparency shows patients how their information is used; data privacy ensures it is handled securely; and the five trust drivers: responsiveness, reliability, integrity, openness, and fairness turn principles into practice. When patients see both protection and benefits, they engage more deeply, outcomes improve, and costs are contained.

At Thryve, we empower healthcare innovators to use patient data responsibly. We aim to help insurers and providers rebuild trust while driving preventive, personalized care. With our specially designed API, we are able to make data collection and integration fast and secure. We offer: 

  • Seamless Device Integration: Easily connect over 500 other health monitoring devices to your platform, eliminating the need for multiple integrations.
  • Standardized Biometric Models: Automatically harmonize biometric data streams, including heart rate, sleep metrics, skin temperature, activity levels, and HRV, making the data actionable and consistent across devices.
  • GDPR-Compliant Infrastructure: Ensure full compliance with international privacy and security standards, including GDPR and HIPAA. All data is securely encrypted and managed according to the highest privacy requirements.  

Book a demo with Thryve to see how secure, transparent data use can transform trust into better health outcomes.

Download our playbook for free here!

Paul Burggraf

Co-founder and Chief Science Officer at Thryve

Paul Burggraf, co-founder and Chief Science Officer at Thryve, is the brain behind all health analytics at Thryve and drives our research partnerships with the German government and leading healthcare institutions. As an economical engineer turned strategy consultant, prior to Thryve, he built the foundational forecasting models for multi-billion investments of big utilities using complex system dynamics. Besides applying model analytics and analytical research to health sensors, he’s a guest lecturer at the Zurich University of Applied Sciences in the Life Science Master „Modelling of Complex Systems“

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